Spino Cerebellar Ataxia Australia Inc - Meetings
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SPINOCEREBELLAR ATAXIA

Australia Inc

 

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Meetings of Spinocerebellar Ataxia Australia Groups

THE NEXT VICTORIAN MEETING

2018 Annual General Meeting (AGM)

To be conducted on Sunday 8th July 2018 at 2.30pm

Venue: Alfred Hospital Commercial Road Melbourne
            Neurological Conference Room
            Level 4 - Centre Block lifts

Contact person is Marie Dunn
     mobile 0428 589 717 email: mdunn6418@gmail.com

Click here to see the agenda for the meeting



People are welcome to share coffee and a chat at the ground floor Cafe after the meeting.

Queensland and Northern New South Wales Branch

Saturday 24 February 2018
Registration from 10am and Session commences at 10:30am
Venue - Nathan Campus - Griffith University
Speaker - Dr Adam Vogel PhD Associate Professor

Adam has been the FA Clinic speech pathologist for the past 11 years. He also runs the Centre for Neuroscience of Speech at The University of Melbourne where he and his team work to improve how we assess and treat speech and swallowing difficulties in progressive brain disorders like ataxia. The team have developed assessments that are used in clinical trials to measure important aspects, namely talking, eating and drinking. These tools help clinicians identify what needs to be treated and what is changing over time. Together with colleagues in Tubingen (Germany), Adam has developed a speech treatment program designed to be completed in the home over a month. Building on our understanding of how speech changes in ataxia, how the brain can re-learn skills and how we can improve our ability to monitor our own speech, pilot data from 20 participants suggests that the speech of people with ataxia may improve with intensive therapy. Funding is being sought to run a larger trial with outcomes to follow if successful. All are welcome, but an RSVP is required if you wish to attend, as soon as possible please, as numbers will determine the room we will be allocated. I will send further details of venue with confirmation of your attendance. Kind regards Lilliana

To RSVP contact Lilliana Di Mascio on Tel: 07 33249342
Mob: 0414 717 235 email: lillianadimascio@gmail.com

NEXT SOUTH AUSTRALIAN MEETING

Combined SCA and CMT support groups meeting

For any information on the SA meetings contact Hoda on 8234 5266 or via email


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